Gary Cooper

305 Posts
Wed, 22nd February 2012, 4:45pm

Attention : e-Shedders & Families & Friends (& carers)  suffering a Rare Disease -

Although Rare Disease Day (International) is Wednesday 29 February, Genetic Health Services Victoria/GSNV is holding a Seminar as under :

2 March 2012   9.00am to 9.45am

GSNV Level 9 South Building Royal Children's Hospita Flemington Road Parkville

The Genetic Support Network Victoria welcomes you. Share a cuppa afterwards. The Seminar Presentation will include results of the Survey*

*  See the web page & go there to read more and complete the Survey:

http://www.rarediseaseday.org/2012/events/show/id/645/country_id/au

EVENTS at the top of this page carries details of Rare Disease Day activities in Australia on (& around) 29 Feb. Open it up and take a look.

There's a huge mountain to climb for rare disease/rare & genetic conditions sufferers in Australia and around the world. Increasing public awareness and acceptance is a simple step all sufferers and carers can take via participating in Rare Disease Day Events & Activities in your city/region.

Gary

 

 

 

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